Stakeholders, medical advocates, and traditional leaders have urged the Federal Government to make genotype testing free in public health facilities nationwide. This call was made during the public presentation of "Understanding Sickle Cell Disease: A Comprehensive Guide for All," authored by Mrs. Adeshetu Musa P. Odiba, a sickle cell survivor. The event, themed "Awareness Today, Healthier Tomorrow," brought together government officials, traditional leaders, health advocates, and members of the sickle cell community.
Odiba emphasized the need for stronger government intervention to reduce the burden of Sickle Cell Disease (SCD) in Nigeria. Despite its significant impact, sickle cell has not received the same level of policy attention and health funding as HIV, tuberculosis, and malaria. Odiba called for free genotype screening, expansion of hospital haematology departments, improved blood-bank facilities, and recruitment of more specialists to support people living with the condition.
Dr. Jumai Ahmadu of the Federal Capital Territory Administration (FCTA) suggested that individuals intending to marry should take responsibility for knowing their genotype. However, she added that government assistance is necessary for those who cannot afford the test. Ahmadu emphasized that genotype testing is mandatory for intending couples, but the government should provide for those who are vulnerable.
Odiba disclosed efforts to introduce sickle cell education into Nigeria's school curriculum, from basic education to the university level. Discussions are ongoing with the National Assembly, including the Senate Committee on Education, to promote early education on genotype compatibility among young Nigerians. Early awareness can help young people make informed decisions about relationships and marriage.
Nigeria ranks highest globally in sickle cell cases due to ignorance regarding genotype compatibility. Odiba stressed the need for young people to understand their genotype and seek appropriate counselling before marriage. She also warned of the emotional and financial challenges that families may face when caring for children living with sickle cell disease.
The President of the Wives of FCT Traditional Rulers Association, Hajia Hauwa Ibrahim Adamu, pledged the support of royal mothers across the 17 traditional kingdoms in the FCT towards tackling stigma associated with the disease. Traditional institutions will help take awareness campaigns to communities and palaces. Adamu emphasized that sickle cell is not a curse or witchcraft, but a medical condition that requires love, knowledge, and care.
Stakeholders urged government, schools, religious organisations, traditional institutions, and healthcare providers to work together to improve public awareness, testing, counselling, and care for people living with SCD. The author's husband, Pastor Samuel Odiba, called on faith-based organisations and religious leaders to make genotype verification part of pre-marital counselling before conducting weddings. Prevention and informed decision-making are critical to reducing the number of families affected by sickle cell disease.
Key points
- Free genotype testing and inclusion of sickle cell education in school curriculum are crucial to combating the disease in Nigeria.
