Retina South Africa is observing World Retina Week from September 21 to 27, 2026, with a focus on "Living Well with Sight Loss." This year's campaign aims to provide practical hope and support for individuals diagnosed with progressive retinal conditions, such as retinitis pigmentosa, age-related macular degeneration, and diabetic retinopathy. The organization emphasizes that a diagnosis does not have to mean the end of independence.
According to Claudette Medefindt, National Secretary and Head of Science at Retina South Africa, "A progressive retinal condition changes how you see the world. It does not have to take away your place in it." The organization offers various services, including counseling, education, referrals, and disability-grant guidance, to support over 3,000 members and volunteers across South Africa's nine provinces.
Retina South Africa is working with researchers at the University of Cape Town and international partners to identify genetic mutations, facilitate genetic testing, and help affected individuals understand their eligibility for clinical trials or emerging therapies. Genetic testing is often the first step towards future treatment. The organization is also advocating for local trials, fair pricing, and public-sector access to treatments.
The organization was founded in 1980 as a patient and disability-led organization and remains the only registered non-profit in South Africa dedicated to people living with retinal disease. Retina South Africa offers a range of services, including psychosocial support, guidance on low-vision aids and workplace adjustments, and para-sport programs.
During World Retina Week, Retina South Africa is urging South Africans to book comprehensive eye examinations, as retinal disease is often silent until vision is already changing. The organization has partnered with Vision Works and the South African Optometric Association to offer free retinal screening until October 31, 2026.
Mariza Jürgens, Vice Chairperson of Retina South Africa, emphasizes that "Living well means knowing your rights, knowing your options, and knowing there is a community that understands." The organization encourages individuals to register with them to access support, genetic testing, and trial opportunities.
World Retina Day, coordinated globally by Retina International, takes place on September 27, 2026. Retina South Africa is calling on the public to support research and patient services that make both treatment and daily living possible. The organization is also promoting its digital workshop series, "Living Well with Vision Loss," which runs throughout World Retina Week and Eye Care Awareness Month.
Key points
- Retina South Africa is offering free retinal screening until October 31, 2026, in partnership with Vision Works and the South African Optometric Association.
